solutely ripped apart. Fighting back tears, Andy added: I cried for six months when I found out Jack had DMD and I cried this morning. Ive really struggled to get a grip of it. We ask every day why this has happened. B
ut setting up Joining Jack has given us a focus. I truly believe we can blow this condition out the water. DMD affects one in 3,500 boys worldwide and is presently incurable. Symptoms usually appear before age five, leading to increasing muscle weakness. Most patients are confined to a wheelchair by the age of 12, progressing to complete paralysis and death by 30. Andy and Alex have made the decision not to tell Jack, a friendly, happy boy who loves baking a
nd films, about the appalling consequences of his condition. Alex, 28, said: Weve decided to tell Jack as and when we need to. At the minute he knows very little as theres nothing really we need to tell him. She added: Jacks early development was normal. But when he was two and a half I noticed his cousin, a year younger than him, seemed to be doing everything so much quicker. We took him to the doctors but they said children develop at different rates. I phoned the health visitor and said he wasnt jumping as other children were. They thought he was flatfooted and referred him to a phy
sio. I could tell she realised there was something wrong - she commented on his oversized calves and the way he stood up. She referred us to a paediatrician. She didnt say anything about Duchenne but I googled oversized calves in children that night and it came up. I read it and completely freaked out. After a series of tests, the devastating diagnosis came in October. Alex said: Before it was confirmed, there was still hope and we just prayed it was a less serious condition. But when we went to see
the consultant and they said it was Duchenne, we just fell apart. After that was just a blur. I used to wake up at five in the morning and clean. Then Id go on the internet and try to find some sort of answer. It was awful, I just cried all the time. The stress was incredible. We just existed. Alex was seven months pregnant with James and faced an agonising wait until he was born to find out if he had DMD. Andy said: The whole family was there when we found out James was OK. Jack was saying: Whats up, whats up, whos OK? because everyone was crying. I will never forget his face.
y, Andy, friends and family set up the Joining Jack charity. He said: We need to completely transform the way DMD is treated. With Ja
ck we havent got five years to sit around and talk about it. Theres gene technology out o
f America which has been shown to stabilise the condition to a degree, which is very exciting. The alternative for Jack is paralysis and ventilation and I cant accept t
hat. Joining Jack has been backed by celebs, including former Coronation Street regular Lucy-Jo Hudson. She and hubby Alan Halsall - mechanic Tyrone Dobbs - have got stars including Catherine Kelly and Michelle Keegan to join the fight and pose doing the JJ joined finger salute -
as have the cast of Emmerdale. Andys former club Wigan Warriors are also on board, with full-back Sam Tomkins doing the salute with fan Rio Ferdinand. Niall of One Direction, Bez, Lee Westwood, Tim Henman, Alan Shearer, Ant and Dec - and Wiggo - are also all on side. Andy, who runs a sign-writing business, said theres been huge support from the public, including school kids, adding: Weve been overwhelmed, its fantastic. Jack now sees a neuromuscular consultant and receives physio from Andy, whos been trained to care for his son. The devoted dad said: This is going to take
an awful lot of money but we 二四六k网站开奖 资料 couldnt have a stronger, more determined team. The thought of walking into Jacks bedroo
m one day and him not being there is something we just cant accept.